Sally and Marianne plan our events carefully to make sure they're affordable without compromising on fun. As Sally says, rare diseases do not discriminate, and everyone must have the opportunity to attend, no matter their financial position. Give generously to the @biggiveorg # ChristmasChallenge and help us to put on more events for more people in 2026. https://buff.ly/wnUgW1Z | MPS Society UK, here for those with rare diseases
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💜 “I give because the National MPS Society has played a very crucial aspect in my life, and I want to make sure the families who are on their MPS/ML journey get the help and assistance that the National MPS Society has given to me and my family.” – Jason This #GivingTuesday, you can make a difference too. Celebrate 50 years of hope, support, and progress by joining our 50 for 50 Giving Tuesday Challenge! Give $50 in honor of our 50th anniversary—or choose an amount that’s meaningful to you—and
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If you’re at the National MPS Society’s 15th International Symposium, check out our wall of art, inspired and created by patients & families. You can even make your own masterpiece. What inspires you? | Sanofi
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This week we went to Capitol Hill with the National MPS Society to advocate for legislation that could help Sadie and many others. It was definitely an experience! We’ve never loved politics, but everyone we met was so kind. Multiple people volunteered to escort us between meetings because the buildings and tunnels can be quite confusing. We didn’t get any nasty looks when Sadie was running or yelling. All the aides we spoke to were empathetic and open to our asks. See our previous post if you’r
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